Wednesday, 1 January 2014

2013

I know i have been pretty shitty with blogging in 2013, i will try my best to be better this year.

But before i start, i feel like i should draw a line under 2013 so this blog post will be doing exactly that.

2013 was a big year. A lot happened although it feels like it was quite uneventful at the same time..

I remember i was supposed to start the treatment for MS on the 21st January, which was also my 22nd birthday, the timing wasn't brilliant but i worked on the basis hat the sooner i started it the better, the 21st January came and i was worried because it was all new to me and i hate needles, but it had been  snowing and the nurse couldn't get to me, so it was rescheduled for the 4th Feb, which meant i could enjoy my birthday :)

i started my treatment on 4th Feb as planned and it wasn't half as bad as i thought it was going to be, this was also the day i started my new job. so it was a big day for me, i definitely slept well that night lol.

i really thought i had landed on my feet with my new job, it was a little bit boring because no-one ever spoke so i spent the day in silence but they seemed to be understanding about my situation, an they even gave e a walking frame to help me cross the site so that i could do my job properly. they were aware of the fact that i had MS and said they would deal with  it as and when they needed too. i was actually going through a relapse when i started but i managed & that seemed to be enough for them. But then 2 weeks before my contract was due to be renewed (we'd spoke about it and it was definitely being renewed) i had a relapse, and this was my worst one yet, the severity of i coupled with my Cerebral Palsy left me practically bedridden so i rang them to let them know what was going on and i was told that they were no longer in a position to renew my contract so they wouldn't be seeing me again! - that was the last thing i needed to hear when trying to recover from a relapse, but i saw it as a blessing in disguise because i wasn't really happy. I guess my MS wasn't a problem whilst it was dormant but the reality is that it scared them off.

i bought myself  mobility scooter to give myself some more freedom & take some slack off dad, it turned out to be a complete waste of money, the battery life is rubbish so i can only use it for really short distances. Dad still prefers to take me everywhere because he was having to come and rescue me when the battery died anyway!

nothing much happened with the rest of the year until October when we got told that my nanna had taken a turn for the worse, she was diagnosed with terminal lung cancer in Feb 2012 and they thought she was in the final stages now, me and my nanna have never had the typical relationship that you are supposed to have with your grandparent, but that didn't make hearing the new any easier, i went to see her at least once or twice a week just so she knew i was there, seeing her so frail and unable to even feed herself or go to the toilet on her own was hard, but i didn't cry in front of her, she knew how upset everybody was, she didn't need to see it too. my nanna lost her fight on the 3rd December 2013 at the age of 67. the whole family was devastated but also relived because it meant her suffering had ended,  RIP Nanna, i love you <3

i got a new job on the 18th December, working as a personal assistant for my step brother, (they won't call me a carer because i don't have the qualifications.) he is 19 and autistic, he has also recently been diagnosed with psychosis and is having a tough time with it. it's not an easy job but is so much more rewarding than just sitting behind  desk.

well that was my 2013 in a nutshell and  this blog post was a lot longer than i was intending it to be!